Jett's story

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“There are so many families who need support just like ours. This is our chance to give back in a small way.”

-Kristy and Damian, parents of 8-year-old Jett who has KCNQ2 and 24 Hour Treadmill Challenge participants

Jett was very ill before he was born. Diagnosed with a serious gene mutation known as KCNQ2, specialists didn’t know if he would make it.

His mum Kristy shares, “As well as coping with debilitating issues with his bones, Jett suffers from severe and frequent seizures, sometimes as many as 20 times in a single day. Before we reached out to Very Special Kids, there were times when I didn’t know how I would cope.

“As soon as I walked through the door of the hospice, I felt the weight fall off my shoulders. I was deeply moved by the efforts of the specialists, nurses and volunteers to properly get to know Jett, the things he loves, the routines that bring him comfort and what makes him unique.”

“No-one can say for sure what the future holds for Jett. His condition constantly creates new challenges for him. But the fact that he is able to not only endure his life, but to enjoy it, that has so much to do with Very Special Kids.”

Jett’s family has taken part in the 24 Hour Treadmill Challenge to help raise money for families just like theirs.