Goal Raised of
Raised
“Very Special Kids is the most amazing thing that’s ever happened to me.”
- Steph, 13 Years Old
Thirteen-year-old Steph has been in and out of hospital her whole life. At 10-weeks old Steph was diagnosed with nystagmus. Then after years of extensive nerve damage, the family received news that she has mitochondrial disease, a debilitating and potentially fatal condition.
"When no one else seemed to have the answers, the team at Very Special Kids are always there to help guide us.”
- Katy, mum to twins Dominic and Damien
In August 2015, Katy gave birth to two beautiful boys Damien and Dominic. Before their first birthday, Katy and Maurice were given the news no parent hopes to hear. The twins were both diagnosed with the same rare genetic life-limiting condition, SMA1 – Spinal Muscular Atrophy.
“Everyone at Very Special Kids was constantly thinking of our family and offering us relief”
- Simone, mum to Lani, Beau, Coco and Alby
Simone and Rob have endured more heartache than any parent ever should — welcoming four children into the world and, tragically, losing two of these precious lives, baby Lani and their ten-year-old son Beau.
